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Hide & Seek is more than a game. Hide & Seek is a community of people dedicated to finding treatments and cures for a devastating genetic condition called Lysosomal Disease.
There are more than 50 such disorders in the Lysosomal Disease family. However, there are no cures and few therapies exist to lessen the severity of their symptoms.
You may have heard about some Lysosomal Disorders, like Tay-Sachs, Gaucher, or MPS. But because the individual disorders are often rare, names like Batten, Fabry, Krabbe, Niemann-Pick and Pompe probably seem foreign to you. Other names, like Mannosidosis, Cystinosis, Mucolipidosis and Aspartylglycosaminuria are not only unfamiliar, but virtually unpronounceable as well.
Lysosomal Disease is not rare. In fact, at least once every 30 minutes, another baby is born with one of the degenerative disorders in the Lysosomal Disease family.
We believe that every child afflicted with Lysosomal Disease has the right to good medicine and effective therapy. We believe this terrible disease must no longer be hidden from our view.
And we believe that science can triumph over these life-threatening syndromes.
That is why the Hide and Seek Foundation is committed to supporting critical, cutting-edge scientific research to cure Lysosomal Disease. That is also why we are raising awareness of Lysosomal Disease across the country and around the globe.
Please join us: Get involved with our community: Learn about and support the research, and help raise millions of dollars to cure Lysosomal Disease. Seek & Connect: Watch videos, connect with kids, who have Lysosomal Disease, and with their friends and families, and interact with scientists -- help build our community. Learn More: Find out about the research, see the latest news and events, and get more information about Lysosomal Disease and the road to a cure.
There is hope. There are cures in sight. We need your help.  |