There are many resources available to patients and families living with Lysosomal Diseases, as well as to scientists and researchers looking for cures for these serious disorders. This section highlights some we find especially useful. Clicking on the section heading will take you to the menu item and more information. Please check back for occasional updates.

Government Agencies

Government agencies such as the National Institutes of Health, the U.S. Food and Drug Administration, and the Centers for Disease Control and Prevention have divisions devoted to research and treatment of Lysosomal Disease.

Patient Groups

Numerous organizations across the country have been formed to provide information, educational programs, support services and research funding for many of the disorders in the Lysosomal Disease family.

Treatment Centers

A state-by-state listing of centers that provide treatment for different Lysosomal Disorders.

Scientific Networks and Umbrella Groups

Professional networks of scientists searching for cures for Lysosomal Disease.

Inspiring Stories

A list of books, movies, and websites that offer personal accounts of tragedies befalling and triumphs empowering those afflicted with diseases, their families, their doctors, and their community.