Hide & Seek Foundation news & updates

Resources

The Centers and Patient Societies are organized by state. Click on the first letter of the state you're looking for to jump to that area of the list. Hold (don't click!) your mouse over the link to display the address of the Center or Society.

All Centers listings are in the United States; Patient Societies listings are worldwide.

 
A - E
Ara Parseghian Medical Research Foundation Univ of Alabama Birmingham
International Morquio Organization Univ of So Alabama Medical Center
Children's Gaucher Disease Research Fund Arkansas Children's Hospital
Cystinosis Foundation Arizona Oncology Associates
Cystinosis Research Foundation Pediatric Hematology/Oncology Associates
333 East Virginia Ave. Phoenix AZ 85004
ph: 602-253-5993
Sophia's Garden Foundation Phoenix Children's Hospital
Canavan Research Foundation Alta Bates Hospital
NORD (Natl. Org. for Rare Disorders) Cedars-Sinai Medical Center
Genetic Alliance Center for Arthritis & Joint Implant
  Children's Hospital Central California
  Kaiser Permanente Hospital
  Kaiser Permanente of Southern California
13652 Cantara St. Panorama City, CA 91402
ph: 818-375-2073
  Scrips Clinic & Research Foundation
  Sutter Metabolic Clinic
5271 F Street, Building C
Sacramento CA 95819
ph: 916-733-7074
  Tower Hematology/Oncology
Comprehensive Gaucher Treatment Center
  UCSF - Stanford Lysosomal Disease Center
  Univ of Southern California
  USC School of Medicine, Division of Hematology
  The Children's Hospital
  The Children's Hospital, IMD Clinic
  Univ of Colorado Health Sciences Center
  Connecticut Children's Medical Center
  Children's National Medical Center
F - J
Jacob Randall Foundation for Morquio Children's Hospital at St. Joseph's Hospital
Bennett Foundation Cornerstone Cancer Center
3850 Tampa Road Palm Harbor FL 34684
ph: 727-789-2595 fax:727-789-8891
Children's Medical Research Foundation (Cure Kirby) Miami Children's Hospital
United Leukodystrophy Foundation Nemours Children's Clinic
Nathan's Battle Foundation The Univ Research Foundation for Lysosomal Storage Disorders
8170 Royal Palm Blvd.
Coral Springs FL 33065
ph: 954-755-1904 fax: 954-755-1910
  Univ of Florida
  Univ of Miami-School of Medicine
  Univ of South Florida Regional Genetics Program
  Walt Disney Memorial Cancer
  Emory Univ School of Medicine
  MCG Children's Medical Center
  Peachtree Hematology/Oncology Consultants
95 Collier Road NW Atlanta GA 30309
ph: 404-350-9853 fax: 404-350-8407
  Univ of Iowa Hospital & Clinics
  Children's Memorial Hospital
  Hematology-Oncology Associates of Illinois
  Univ of Chicago Hospital
  Indiana Univ
K - M
Adrenoleukodystrophy Foundation Norton Healthcare Pavillion
Ben's Dream - Sanfilippo Research Foundation Univ of Louisville
Cystinosis Research Network Univ of Louisville, School of Medicine
National Tay-Sachs & Allied Diseases Association Tulane Univ Medical Center
International Society for Mannosidosis & Related Diseases Baystate Medical Center
National MPS Society Children's Hospital Boston
Fabry Support and Information Group Massachusetts General Hospital
  New England Medical Center
  Univ of Massachusetts
  Johns Hopkins Hospital
  National Institutes of Health
  Maine Medical Center
  Hematology/Oncology Associates
3601 West 13 Mile Road Royal Oak MI 48073
ph: 248-288-5400
  Michigan State University
  The Michigan Comprehensive Cancer Institute
  Children's Hospital and Clinics
  Mayo Clinic
  Univ of Minnesota Healthcare
  Children's Mercy Hospital
  Univ of Kansas Medical Center
  Washington UnivSchool of Medicine
N - O
Julia's Hope - The Sanfilippo Syndrome Medical Research Fdn. Duke Children's Hospital & Health Center
Cameron and Hayden Lord Foundation, The Duke Univ Medical Center
Genetic Disease Foundation Creighton Univ
Hunter’s Hope Foundation Univ of Nebraska Medical Center
Mucolipidosis IV Foundation Dartmouth-Hitchcock Medical Center
Batten Disease Support and Research Association Hackensack Univ Medical Center
MLD (Metachromatic Leukodystrophy) Foundation Holy Name Hospital
  St. Barnabas Ambulatory Care Center
  St. Peter's Univ Hospital Institute for Genetic Medicine
  Univ of New Mexico
  Southwest Cancer Clinic
3730 Southeastern Street
Las Vegas NV 98109
ph: 702-735-4002 fax: 702-952-3460
  Albany Medical College
  Hemophilia Center of Western New York
  Long Island Jewish Medical Center
  Mount Sinai Medical Center / Department of Human Genetics
  New York Medical College
  New York Univ School of Medicine
  Northshore-Long Island Jewish Health System - Division of Genetics
  The Brookdale Hospital Medical Center
  Women's and Children's Hospital of Buffalo- Division of Genetics
  Case Western Reserve Univ
  Children's Hospital Research Foundation
  Cleveland Clinic Foundation
  Columbus Oncology & Hematology Associates
  Children's Hospital of Oklahoma
  Oregon Health & Science University
P - Z
DJ's Foundation for Tay-Sachs Children's Hospital of Philadelphia
Acid Maltase Deficiency Association

Pennsylvania Oncology/Hematology
230 West Washington Square
Philadelphia PA 19106
ph: 215-829-6088 fax: 215-829-6104

Luke & Rachel Batten Foundation Univ of Pittsburg
Ryan Foundation Rhode Island Hospital
Stennis Foundation for MLD MUSC-Department of Pediatrics / Division of Genetics
Myelin Project South Carolina Medical Univ
International Patient Advocacy Association Baptist Medical Center
Jim Lambright Niemann-Pick Research Fund TC Thompson Children's Hospital
National Niemann-Pick Disease Foundation Univ of Tennessee Medical Center
National Gaucher Foundation Univ of Tennessee-Memphis
  Vanderbilt Univ Medical Center
  Baylor College of Medicine
  Cook's Children's Medical Center
  Santa Rosa Children's Hospital
  Scott & White Memorial Hospital
  Univ of Texas Southwestern Medical Center
  Univ of Utah Medical Center
  Children's Hospital of Kings Daughters
  Univ of Virginia
  Univ of Washington Medical Center
  Children's Hospital of Wisconsin
International
Canadian MPS Society  
Sanfilippo Children's Research Foundation  
CLIMB (Children Living with Inherited Metabolic Disorders)  
Cystinosis Foundation UK  
EURORDIS - European Org. for Rare Diseases  
GOLD (Global Org. for Lysosomal Diseases)  
Lysosomal Diseases Australia  
Lysosomal Diseases New Zealand  
Society for MPS Diseases  
finding cures for children with lysosomal disease
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